User talk:WikiEd97531

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Your submission at Articles for creation: De Simone Formulation (February 11)

Your recent article submission to Articles for Creation has been reviewed! Unfortunately, it has not been accepted because it included copyrighted content, which is not permitted on Wikipedia. You are welcome to write an article on the subject, but please do not use copyrighted work.

• Draft:De Simone Formulation may be deleted at any time unless the copied text is removed. Copyrighted work cannot be allowed to remain on Wikipedia.
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TheBirdsShedTears (talk) 05:25, 11 February 2022 (UTC)

Your submission at Articles for creation: De Simone Formulation (May 9)

Your recent article submission to Articles for Creation has been reviewed! Unfortunately, it has not been accepted at this time. The reasons left by Gusfriend were:  The comment the reviewer left was: Please check the submission for any additional comments left by the reviewer. You are encouraged to edit the submission to address the issues raised and resubmit after they have been resolved.

• If you would like to continue working on the submission, go to Draft:De Simone Formulation and click on the "Edit" tab at the top of the window.
• If you now believe the draft cannot meet Wikipedia's standards or do not wish to progress it further, you may request deletion. Please go to Draft:De Simone Formulation, click on the "Edit" tab at the top of the window, add "{{Db-g7}}" at the top of the draft text and click the blue "publish changes" button to save this edit.
• If you do not make any further changes to your draft in the next 6 months, it will be considered abandoned and may be deleted.
• If you need any assistance, or have experienced any untoward behavior associated with this submission, you can ask for help at the Articles for creation help desk, on the reviewer's talk page or use Wikipedia's real-time chat help from experienced editors.

Gusfriend (talk) 14:16, 9 May 2022 (UTC)

Your submission at Articles for creation: De Simone Formulation has been accepted

De Simone Formulation, which you submitted to Articles for creation, has been created.

Congratulations, and thank you for helping expand the scope of Wikipedia! We hope you will continue making quality contributions.

The article has been assessed as Start-Class, which is recorded on its talk page. Most new articles start out as Stub-Class or Start-Class and then attain higher grades as they develop over time. You may like to take a look at the grading scheme to see how you can improve the article.

Since you have made at least 10 edits over more than four days, you can now create articles yourself without posting a request. However, you may continue submitting work to Articles for creation if you prefer.

If you have any questions, you are welcome to ask at the help desk. Once you have made at least 10 edits and had an account for at least four days, you will have the option to create articles yourself without posting a request to Articles for creation.

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Thanks again, and happy editing!

🇺🇦 Fiddle^Timtrent Faddle^Talk to me 🇺🇦 16:00, 17 July 2022 (UTC)

January 2023

Hello WikiEd97531. The nature of your edits, such as the one you made to De Simone Formulation ‎, gives the impression you have an undisclosed financial stake in promoting a topic, but you have not complied with Wikipedia's mandatory paid editing disclosure requirements. Paid advocacy is a category of conflict of interest (COI) editing that involves being compensated by a person, group, company or organization to use Wikipedia to promote their interests. Undisclosed paid advocacy is prohibited by our policies on neutral point of view and what Wikipedia is not, and is an especially serious type of COI; the Wikimedia Foundation regards it as a "black hat" practice akin to black-hat search-engine optimization.

Paid advocates are very strongly discouraged from direct article editing, and should instead propose changes on the talk page of the article in question if an article exists. If the article does not exist, paid advocates are extremely strongly discouraged from attempting to write an article at all. At best, any proposed article creation should be submitted through the articles for creation process, rather than directly.

Regardless, if you are receiving or expect to receive compensation for your edits, broadly construed, you are required by the Wikimedia Terms of Use to disclose your employer, client and affiliation. You can post such a mandatory disclosure to your user page at User:WikiEd97531. The template {{Paid}} can be used for this purpose – e.g. in the form: {{paid|user=WikiEd97531|employer=InsertName|client=InsertName}}. If I am mistaken – you are not being directly or indirectly compensated for your edits – please state that in response to this message. Otherwise, please provide the required disclosure. In either case, do not edit further until you answer this message. Ozzie10aaaa (talk) 23:22, 22 January 2023 (UTC)

I am a person who has a chronic illness and struggles to get information from my doctors or find it online. I have had eight operations and many other procedures since falling ill a couple of years ago. I was suffering and my doctor said it was from dysbiosis. I researched my own information because they provide nothing. I found this treatment listed in articles under the name VSL#3, spoke to my doctors about taking it, then had to figure out what the dose in my situation would be. I called the makers of VSL#3 in the USA and they assured me they were the product from the studies. However, the person on the scientific line could not give me scientific information or even tell me if the medical food product had been studied for the way I wanted to use it. That was a huge red flag! If you have ever been sick (really sick) you know that pharma related companies have this info to hand or someone with a science degree will get it to you. I dug harder because it was strange and found the lawsuits, name change, all of it. I asked other patients with the same condition - they were also confused. My doctors (at a huge uni hospital) didn't know and kept putting the wrong name (VSL#3) in my notes even though I was taking the original which sells under another name. Do you know it can take an act of U.S. Congress to change typos in a hospital medical file??! When someone is so unwell, every detail about the medications taken needs to be 100% accurate. Every variable matters. All while being very ill and just trying to find ways to restore my health. I made the page to connect the dots in October 2021 to help others: patients and doctors. And if anyone wants the 'new' VSL#3 (which might work for some) they know how to find that and were to read legit studies on that new version (and not be misled by older studies done on a different product). At the time I began writing the page, the 'new' VSL#3 makers online materials still stated/connected it to the original formulation and did not make it clear the product changed. And as I said, the scientific line told me it was the same which was a dangerous lie. I told them how sick I was and they didn't care - pushed me to use it as the 'original'. I felt this was disgustingly selfish. It should not be this hard to finid correct information for a main treatment used in digestive system diseases. I spent months reading court papers online to unpick the mess for myself, and journal studies, then made the page to help others. WikiEd97531 (talk) 14:30, 26 January 2023 (UTC)

thank you for your explanation, please revert back to what you believe should be on the article in question,(have removed tag [1]) --Ozzie10aaaa (talk) 02:31, 28 January 2023 (UTC)

Hello,

Thank you. I will look at what's there and make some edits. When I opened the page, I asked questions and also did that 'live chat help' to be sure I was adjusting to Wikipedia-style. The diseases managed using this 'generic name' probiotic product also use other pharma related products and they all have pages on Wikipedia.

For example, the article stated the U.S.'s national gastroenterology guidelines (AGA) in 2019 stated that the proboitic they sited as 'VSL#3' was in fact the original formulation which I guess you can call a 'generic name' is De Simone Formulation since the brands are Visbiome (USA and Canada), Vivomixx (EU and I think India?), and some other drill-downs like Innovall CU in Germany but all those brands use the De Simone Formulation. As someone who has one of the diseases managed using this treatment, other "medications" include Infliximab which has a page on Wikipedia and it mentions the brand names like Remicaid. Infliximab is *very* expensive I heard in support groups that some people pre-Obamacare were pressured into colectomies because their insurance did not want to keep paying for such a high priced drug (that can lead to cancer developing due to the ant-TNF nature of it). A person with inflammatory bowel disease just diagnosed would be prescribed mesazaline (which has a page on Wikipedia too) and either VSL#3 or the De Simone Formulation. There are many probiotics out there but you have to match the formula to the person's individual situation. Some people are low on bacteria x, other's y. A probiotic for y won't help x. This is why I feel the clarification is important! Also, somehow (I'm not a scientist) how the formula is made also impacts the metabolites produced. Stanford research found that IBD including pouches made as a result of IBD colectomy, are largely diseeases caused by missing microbes'. Probiotics are the replacement products. That's why I am so passionate about just helping people find VSL#3 or De Simone - for their own situation. (Colon cancer for example is the #2 killer in the USA for both genders combined... maybe people with IBD progress to cancer.) Stanford: https://med.stanford.edu/news/all-news/2020/02/stanford-scientists-link-ulcerative-colitis-to-missing-gut-micro.html

Anyway, please just tell me what you think needs adjusting and I'll fix it. My aim was to help people find the scientific, legal, academic etc info.

Also: https://en.wikipedia.org/wiki/Pfizer%E2%80%93BioNTech_COVID-19_vaccine

IBD medications taken alongside the 'probiotics':

https://en.wikipedia.org/wiki/Mesalazine

https://en.wikipedia.org/wiki/Infliximab WikiEd97531 (talk) 15:18, 28 January 2023 (UTC)

No, I don't concur.

Please go first to the discussion page, we have many violations against WP:PROMO, WP:MEDRS, WP:OR.

What we need is especially reliable secondary sources. --Julius Senegal (talk) 20:15, 28 January 2023 (UTC)

Hiya,

I am trying to evolve the page entry that I opened while in hospital after losing an organ and was at risk for losing more bowel. Your posts are strangely aggressive and you labeled this a promotion for the professor who invented it, which I find odd every time I see the flag. The page title is the therapy/treatment and I included him because I feel it is relevant to know if a medical doctor developed it. In the IBD space, patients will know that for surgery one pouch surgery option is called a Koch pouch after its doctor inventor. Another is the Parks' pouch after its inventor. Parks also has other surgical treatments named after him including "Parks' painless proctoplasty". Another example is the Hegar dilator which people who have had rectal surgery might be prescribed after surgery named after German doctor Hegar. In my opinion, this is no different. Further, I can't understand why you are so against this entry and come across as an assuming sniper rather than a collaborator who wants to evolve entries for info to help people.

(Personal attack removed) WikiEd97531 (talk) 12:54, 9 February 2023 (UTC)

Discussion please on the dicussion page, not here. I have removed your insult. --Julius Senegal (talk) 14:14, 9 February 2023 (UTC)

I am the one who feels attacked by aggression. The wording in your 'warning' is intimidation. It wasn't an insult - it was a fact from online. I can prove it to Wikipedia. I will report you for excessive force, and not collaborating if you keep trolling me. I don't want to be intimidated for trying to contribute. I am trying to contribute and you are not in the spirit of collaboration, based on how you speak to me which is all online. WikiEd97531 (talk) 18:04, 29 May 2023 (UTC)