User:Rghx/sandbox/Health Information On the Internet Sandbox FIrst Edit
This article may require copy editing for grammar, style, cohesion, tone, or spelling. (February 2020) |
Health information on the Internet refers to all health related communications conducted through the Internet.
Introduction
[edit]The internet can be a useful resource for finding health information. Accessibility to online information is something that has grown as technological advances have come along. In the late 1990s, researchers noted an increase in people using the internet to access health-related content despite various implications that come with accessing this type of information online including variation in quality of health information, level of accessibility and overall health literacy.[1] Moreover, accessibility on its own to online health information does not guarantee that the quality of such information will be easier to understand for the individual since health literacy is not always an ability that people have.
It is believed that patients who have knowledge of their personal medical history, will interpret and learn from this information in a way that benefits them.[2] but this is not always the case since there has not been a international implementation of standards regarding the quality of health information that is accessible on the internet. [3] Physicians worry that patients who conduct personal research of their medical history on the Internet are at risk for being misinformed when seeking health information on the Internet.[4]
As of 2013, opinions about the relationship health care providers should have with online health information were still being established.[5] According to one 2014 study, "The flow of information has fundamentally changed, and physicians have less control over health information relayed to patients. Not surprisingly, this paradigm shift has elicited varied and sometimes conflicting views about the value of the Internet as a tool to improve health care."[6]
Social media channels have been noted as places which physicians can visit to get insight on patient thoughts.[7] Patients have increasingly turned to social media for health information, sometimes of dubious quality.[8][9][10][11] Several studies have used social media to gather data on patients' adverse drug reactions (ADRs), with generally promising results.[12]
Various commercial organizations use health information gathered from the Internet. The use of health information gathered from social media has been described as raising serious ethical and privacy concerns,[13][14] including the risk of accidental violations of patient privacy by health care providers on social media.[15][16]
Educational resources for lay audiences
[edit]Background on the doctor–patient relationship
[edit]Physicians often have difficulty explaining complicated medical concepts to their patients, and similarly patients often have difficulty understanding complicated things their physicians tell them. One reason for this is that a patient's visit to a physician is likely to be less than 15 minutes, and physicians are unable to spend more time which patients typically desire.[17] Physicians may use medical terms which patients do not understand, but would like to learn.[18] A consensus exists that patients should have shared decision making, which means that they make informed decisions about the direction of their health care in collaboration with their physician.[19] Rich, educated, and socially advantaged patients enjoy many more benefits of shared decision making than patients who have disadvantages in getting healthcare, who maybe of a lower socioeconomic class or of minority status.[20]
A patient's understanding lack of understanding their health contributes to a range of problems including the tendency to not adhere to the physician's medical advice, or miss medical appointments.[21] Patients without access to health information are also more likely to use complementary and alternative medicine, which is not evidence-based medicine, and fail to inform their physician that they are doing so.[21][22] While some benefits can be gained by training physicians to be more efficient in serving patients, there are also benefits in training patients to be more efficient in getting benefits from physicians. Some evidence points to the conclusion that efficient patient behavior is a powerful strategy for improving health care processes.[23]
Resources
[edit]Various social forums exist in which anyone can have conversations about health with their peers. Such forums are especially popular among patients who seek to have conversations about shared medical concerns with others.[24] Those who participate in online communities which discuss health issues report feeling relief about their health worries, perceiving more control over their health and medical condition, having more medical knowledge, and having more personal agency overall.[25]
Some research has failed to find evidence to validate physicians' concerns that patients typically receive misinformation online or using health information to inappropriately conduct self diagnosis.[24][26][27] Patients with chronic diseases who use the internet to get health information often acquire good skills to judge the quality of information which they find.[28]
Academic medical literature
[edit]The written record of medical consensus is stored in scientific journals. Since the advent of electronic publishing there has been academic journal publishing reform which had a range of effects, including more researchers and physicians having greater access to professional information in medical journals through the Internet.
Patients' personal health information
[edit]Through various sources both publicly and privately available, datasets containing health information about large numbers of patients are available on the Internet to an extent which was impossible to manage before the Internet.
Some problems with accessibility to online health information can be attributed to the inefficiency of using search engines to seek health information.[29]
- ^ Risk, A.; Petersen, C. (2002). "Health Information on the Internet". JAMA. 287 (20): 2713–2715. doi:10.1001/jama.287.20.2713. PMID 12020308.
- ^ Beaudin, JS; Intille, SS; Morris, ME (2006). "To track or not to track: user reactions to concepts in longitudinal health monitoring". Journal of Medical Internet Research. 8 (4): e29. doi:10.2196/jmir.8.4.e29. PMC 1794006. PMID 17236264.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Risk, A.; Petersen, C. (2002). "Health Information on the Internet". JAMA. 287 (20): 2713–2715. doi:10.1001/jama.287.20.2713. PMID 12020308.
- ^ Robeznieks, A (May 21, 2007). "Getting personal. Legal liability, patient-data overload among issues making physicians uneasy over emergence of personal health records". Modern Healthcare. 37 (21): 40–2. PMID 17824189.
- ^ Farnan, Jeanne M. (16 April 2013). "Online Medical Professionalism: Patient and Public Relationships: Policy Statement From the American College of Physicians and the Federation of State Medical Boards". Annals of Internal Medicine. 158 (8): 620–7. doi:10.7326/0003-4819-158-8-201304160-00100. PMID 23579867.
- ^ Tonsaker, Tabitha; Bartlett, Gillian; Trpkov, Cvetan (2016-11-14). "Health information on the Internet". Canadian Family Physician. 60 (5): 407–408. ISSN 0008-350X. PMC 4020634. PMID 24828994.
- ^ Verhoef, Lise M; Van de Belt, Tom H; Engelen, Lucien JLPG; Schoonhoven, Lisette; Kool, Rudolf B (20 February 2014). "Social Media and Rating Sites as Tools to Understanding Quality of Care: A Scoping Review". Journal of Medical Internet Research. 16 (2): e56. doi:10.2196/jmir.3024. PMC 3961699. PMID 24566844.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Prybutok, Gayle; Ryan, Sherry (2015-04-01). "Social media: the key to health information access for 18- to 30-year-old college students". Computers, Informatics, Nursing. 33 (4): 132–141. doi:10.1097/CIN.0000000000000147. ISSN 1538-9774. PMID 25887107.
- ^ Lau, A. Y. S.; Siek, K. A.; Fernandez-Luque, L.; Tange, H.; Chhanabhai, P.; Li, S. Y. W.; Elkin, P. L.; Arjabi, A.; Walczowski, L. (2011-01-01). "The role of social media for patients and consumer health". IMIA Yearbook. 6 (1): 131–138.
- ^ Fernández-Luque, Luis; Bau, Teresa (2015-01-01). "Health and social media: perfect storm of information". Healthcare Informatics Research. 21 (2): 67–73. doi:10.4258/hir.2015.21.2.67. PMC 4434065. PMID 25995958.
- ^ Helve, Otto; Kattelus, Mervi; Norhomaa, Samuli; Saarni, Samuli (2015-01-01). "[Health information and social media: the doctor as a primary school teacher again]". Duodecim; Laaketieteellinen Aikakauskirja. 131 (21): 2003–2008. ISSN 0012-7183. PMID 26677551.
- ^ Sarker, Abeed; Ginn, Rachel; Nikfarjam, Azadeh; O'Connor, Karen; Smith, Karen; Jayaraman, Swetha; Upadhaya, Tejaswi; Gonzalez, Graciela (2015-04-01). "Utilizing social media data for pharmacovigilance: A review". Journal of Biomedical Informatics. 54: 202–212. doi:10.1016/j.jbi.2015.02.004. ISSN 1532-0480. PMC 4408239. PMID 25720841.
- ^ Denecke, K.; Bamidis, P.; Bond, C.; Gabarron, E.; Househ, M.; Lau, A. Y. S.; Mayer, M. A.; Merolli, M.; Hansen, M. (2015-08-13). "Ethical Issues of Social Media Usage in Healthcare". Yearbook of Medical Informatics. 10 (1): 137–147. doi:10.15265/IY-2015-001. ISSN 0943-4747. PMC 4587037. PMID 26293861.
- ^ Moorhead, S Anne; Hazlett, Diane E; Harrison, Laura; Carroll, Jennifer K; Irwin, Anthea; Hoving, Ciska (2013-04-23). "A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication". Journal of Medical Internet Research. 15 (4): e85. doi:10.2196/jmir.1933. ISSN 1439-4456. PMC 3636326. PMID 23615206.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Ventola, C. Lee (2016-11-14). "Social Media and Health Care Professionals: Benefits, Risks, and Best Practices". Pharmacy and Therapeutics. 39 (7): 491–520. ISSN 1052-1372. PMC 4103576. PMID 25083128.
- ^ Shay, Daniel F. (2014-08-25). "Physician use of social media: navigating the risks. Establish social media guidelines to protect health information, and reputation of practice and physicians". Medical Economics. 91 (16): 44–46. ISSN 0025-7206. PMID 25509476.
- ^ Mechanic, David; McAlpine, Donna D.; Rosenthal, Marsha (18 January 2001). "Are Patients' Office Visits with Physicians Getting Shorter?". New England Journal of Medicine. 344 (3): 198–204. doi:10.1056/NEJM200101183440307. PMID 11172143.
- ^ Castro, CM; Wilson, C; Wang, F; Schillinger, D (Sep–Oct 2007). "Babel babble: physicians' use of unclarified medical jargon with patients". American Journal of Health Behavior. 31 Suppl 1: S85–95. doi:10.5993/ajhb.31.s1.11. PMID 17931142.
- ^ Braddock III, Clarence H.; Edwards, Kelly A.; Hasenberg, Nicole M.; Laidley, Tracy L.; Levinson, Wendy (22 December 1999). "Informed Decision Making in Outpatient Practice". JAMA. 282 (24): 2313–20. doi:10.1001/jama.282.24.2313. PMID 10612318.
- ^ Fiscella, Kevin; Epstein, Ronald M. (22 September 2008). "So Much to Do, So Little Time:care for the socially disadvantaged and the 15-minute visit". Archives of Internal Medicine. 168 (17): 1843–52. doi:10.1001/archinte.168.17.1843. PMC 2606692. PMID 18809810.
- ^ a b A better source should be used to support this claim, although this source is good enough for how it is used here.
- Wicks, Paul; Massagli, Michael; Frost, Jeana; Brownstein, Catherine; Okun, Sally; Vaughan, Timothy; Bradley, Richard; Heywood, James (14 June 2010). "Sharing Health Data for Better Outcomes on PatientsLikeMe". Journal of Medical Internet Research. 12 (2): e19. doi:10.2196/jmir.1549. PMC 2956230. PMID 20542858.
{{cite journal}}
: CS1 maint: unflagged free DOI (link)
- Wicks, Paul; Massagli, Michael; Frost, Jeana; Brownstein, Catherine; Okun, Sally; Vaughan, Timothy; Bradley, Richard; Heywood, James (14 June 2010). "Sharing Health Data for Better Outcomes on PatientsLikeMe". Journal of Medical Internet Research. 12 (2): e19. doi:10.2196/jmir.1549. PMC 2956230. PMID 20542858.
- ^ Robinson, A; McGrail, MR (Jun–Sep 2004). "Disclosure of CAM use to medical practitioners: a review of qualitative and quantitative studies". Complementary Therapies in Medicine. 12 (2–3): 90–8. doi:10.1016/j.ctim.2004.09.006. PMID 15561518.
- ^ Lorig, K (Mar 9, 2002). "Partnerships between expert patients and physicians". Lancet. 359 (9309): 814–5. doi:10.1016/S0140-6736(02)07959-X. PMID 11897275.
- ^ a b Eysenbach, G. (15 May 2004). "Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions". BMJ. 328 (7449): 1166–0. doi:10.1136/bmj.328.7449.1166. PMC 411092. PMID 15142921.
- ^ Barak, Azy; Boniel-Nissim, Meyran; Suler, John (September 2008). "Fostering empowerment in online support groups". Computers in Human Behavior. 24 (5): 1867–1883. doi:10.1016/j.chb.2008.02.004.
- ^ Ahmad, F; Hudak, PL; Bercovitz, K; Hollenberg, E; Levinson, W (Sep 29, 2006). "Are physicians ready for patients with Internet-based health information?". Journal of Medical Internet Research. 8 (3): e22. doi:10.2196/jmir.8.3.e22. PMC 2018833. PMID 17032638.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Crocco, AG; Villasis-Keever, M; Jadad, AR (Jun 5, 2002). "Analysis of cases of harm associated with use of health information on the internet". JAMA: The Journal of the American Medical Association. 287 (21): 2869–71. doi:10.1001/jama.287.21.2869. PMID 12038937.
- ^ Stevenson, FA; Kerr, C; Murray, E; Nazareth, I (Aug 16, 2007). "Information from the Internet and the doctor-patient relationship: the patient perspective--a qualitative study". BMC Family Practice. 8: 47. doi:10.1186/1471-2296-8-47. PMC 2041946. PMID 17705836.
{{cite journal}}
: CS1 maint: unflagged free DOI (link) - ^ Berland, G. K.; Elliott, M. N.; Morales, L. S.; Algazy, J. I.; Kravitz, R. L.; Broder, M. S.; Kanouse, D. E.; Muñoz, J. A.; Puyol, J. A.; Lara, M.; Yang, H.; McGlynn, E. A. (2001). "Health Information on the Internet". JAMA. 285 (20): 2612–2621. doi:10.1001/jama.285.20.2612. PMC 4182102. PMID 11368735.
{{cite journal}}
:|first11=
missing|last11=
(help); Unknown parameter|l ast11=
ignored (help)