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Wikipedia:Meetup/St. Louis/RareDiseaseDay2016

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St. Louis Rare Disease Day 2016 Edit-a-thon
When and Where
DateMonday, February 29, 2016
Time6:00 pm – 8:00 pm CT
AddressCreative Experience room
Central St. Louis Public Library
1301 Olive Street
City, StateSt. Louis, MO 63103

This event has already taken place!

In honor of Rare Disease Day, we added information to rare disease articles about how people can find community support.

Anyone was welcome to attend. If you were a newcomer, you would have made your first edit on Wikipedia by the end of the event!

Not in St. Louis? Check out our sister event in Washington, DC or participate remotely.

Event information

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  • Date: Monday, February 29, 2016
  • Time: 6:00 pm – 8:00 pm
  • Location: Creative Experience room at Central St. Louis Public Library, 1301 Olive Street, St. Louis, MO 63103
  • Cost: Free!
  • Please bring your own laptop. If you cannot bring one, let us know, and we'll find one for you.

What to expect

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No Wikipedia editing experience necessary; as needed throughout the event, tutoring will be provided for Wikipedia newcomers. If you are unfamiliar with Wikipedia, you can get a head start with this this training module.

Resources for editing

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Medical Wikipedia resources

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Attendees

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Please add your Wikipedia username to the appropriate section below (signatures are created by saving four tildes [~] in a row). To best avoid technical complications, create a Wikipedia account prior to the event. We will also offer assistance to create accounts on-site.

In person

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  1. Verbistheword (talk) 18:04, 22 February 2016 (UTC)[reply]
  2. I'll try to be there! Wustl ajr (talk) 21:14, 22 February 2016 (UTC)[reply]
  3. I'm here to help! Ckoerner (talk) 21:45, 23 February 2016 (UTC)[reply]
  4. Jackiekoerner (talk) 16:44, 27 February 2016 (UTC)[reply]
  5.  Wustlja (talk) 00:18, 1 March 2016 (UTC)[reply]

Remote

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Everything you need to help out should be on this page. If you have questions or want to share exciting discoveries, you can comment on the event Talk Page or even tweet with #RareDiseaseDay #editathon. For even faster help, Tweet directly at @verbistheword.

  1. ...

What to edit

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Most Wikipedia articles about diseases use a standard set of sections. This edit-a-thon focuses on adding community support information to the section called "Treatment", or sometimes, "Management".

  1. Select a rare disease article of your choosing. If you can't decide, we can help ya.
  2. Take a look through the article. Make sure it doesn't already contain information about the organizations that support people affected by the disease.
  3. Look up the disease in NORD's database.
  4. Scroll down to the database entry's "Supporting Organizations" section.
  5. Mention the organizations listed by NORD in the article's "Treatment" or "Management" section. (See template below.)
  6. Add CITATIONS! Start by citing the NORD database page. If you can find some other reliable sources, use them, too.

If you get stuck, ask for help. And, if it's too hard to find information for the article you choose, it's fine to switch to a different article!

We hope you'll add this information to at least one article. If you have time and energy for more, that's great, too!

Template for "Treatment" or "Management" section

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Follow the steps above to complete and add this template to the "Treatment" or "Management". Don't forget citations!

People affected by [disease] are supported by multiple organizations, including [name], [name], and [name].

Bonus

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You can wikilink the word awareness, if it comes up in your edit, to the consciousness raising article.

Articles created/improved

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Articles that participants have created or worked to improve.

  1. Upington disease Ckoerner (talk) 00:54, 1 March 2016 (UTC)[reply]
  2. Lyngstadaas syndrome Ckoerner (talk) 00:54, 1 March 2016 (UTC)[reply]
  3. Erdheim–Chester_disease: Added citations and another support group mention —Verbistheword (talk) 00:55, 1 March 2016 (UTC)[reply]
  4. Blue diaper syndrome Added information about symptoms, treatments, and syndrome synonyms Jackiekoerner (talk) 01:09, 1 March 2016 (UTC)[reply]
  5. Coffin–Lowry syndrome added support group Wustl ajr (talk) 01:12, 1 March 2016 (UTC)[reply]
  6. Tietz syndrome added Characteristics section describing the disease Ckoerner (talk) 01:35, 1 March 2016 (UTC)[reply]
  7. Alopecia universalis Added details and citation for definition, causes Wustlja (talk) 01:47, 1 March 2016 (UTC)[reply]
  8. Williams syndrome Added information about support organizations Ckoerner (talk) 01:53, 1 March 2016 (UTC)[reply]
  9. Dipygus Added causes and signs Jackiekoerner (talk) 04:24, 1 March 2016 (UTC)[reply]
  10. Osteogenesis imperfecta Added community support section and citations —Verbistheword (talk) 21:41, 9 March 2016 (UTC)[reply]
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