User talk:AC Jens at STAR Foundation
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I hope you enjoy editing Wikipedia! Please sign your name on talk pages using four tildes (~~~~); this will automatically produce your name and the date. Feel free to write a note on the bottom of my talk page if you want to get in touch with me. Again, welcome! — Diannaa (talk) 20:54, 11 August 2024 (UTC)
- Hi Diannaa and thank you -- Wikipedia is such a service and well known to the general public. goal of updating this page is to share information to general public about ISSD --- point them in the right direction! The text added was from https://rarediseases.org/rare-diseases/lysosomal-free-sialic-acid-storage-disorders/ . How could we direct lay persons to the information in that NORD report (especially parents getting a new ISSD diagnosis that might know to come to wikipedia but not to NORD) without infriging on copyright (but acknowleding NORD).? Would it be acceptable to add to the Wiki page i.e. "For signs, symptoms, causes and therapies, see Lysosomal Free Sialic Acid Storage Disorders, published by National Organization for Rare Disorders (updated 8/2/2023)." [then add the reference?] my goal isn't to infringe on copyright, just to get information on the disease out to lay people and families. thanks so much, let me know if that is an acceptable path, AC. AC Jens at STAR Foundation (talk) 02:11, 12 August 2024 (UTC)
- Hi AC Jens. There's several problems with your submission. You cannot post copyright material on Wikipedia even if you are the copyright holder or have their permission, unless special documentation is in place. That is because Wikipedia aims to be freely distributable and copyable by anyone, and all content must have the appropriate documentation in place before that can happen. Please see Wikipedia:donating copyrighted materials which explains how it works.For medical information, Wikipedia has stricter sourcing rules than elsewhere in the encyclpedia. You can find these at Wikipedia:Identifying reliable sources (medicine). In a nutshell, a website such as https://rarediseases.org/es/ is not considered a reliable source for medical information on Wikipedia. So even if you obtained permission, we would not want to accept content from that source.Another problem is conflict of interest. Writing an article about your own organisation or that of a client is strongly discouraged, as it is difficult to maintain the required neutral point of view. According to our terms of use, paid editors and people editing on behalf of their employer are required to disclose their conflict of interest by posting a notice on their user page or talk page. See WP:DISCLOSE for how to do that. — Diannaa (talk) 11:44, 12 August 2024 (UTC)
- I'm sorry but I am unfamiliar with using these templates and how to use them. I just attempted to use the connected contributor template on the Talk:Infantile free sialic acid storage disease page -- hope this is correct! AC Jens at STAR Foundation (talk) 12:41, 12 August 2024 (UTC)
- You should also place one on your userpage: User:AC Jens at STAR Foundation — Diannaa (talk) 19:17, 12 August 2024 (UTC)
- I'm sorry but I am unfamiliar with using these templates and how to use them. I just attempted to use the connected contributor template on the Talk:Infantile free sialic acid storage disease page -- hope this is correct! AC Jens at STAR Foundation (talk) 12:41, 12 August 2024 (UTC)
- Hi AC Jens. There's several problems with your submission. You cannot post copyright material on Wikipedia even if you are the copyright holder or have their permission, unless special documentation is in place. That is because Wikipedia aims to be freely distributable and copyable by anyone, and all content must have the appropriate documentation in place before that can happen. Please see Wikipedia:donating copyrighted materials which explains how it works.For medical information, Wikipedia has stricter sourcing rules than elsewhere in the encyclpedia. You can find these at Wikipedia:Identifying reliable sources (medicine). In a nutshell, a website such as https://rarediseases.org/es/ is not considered a reliable source for medical information on Wikipedia. So even if you obtained permission, we would not want to accept content from that source.Another problem is conflict of interest. Writing an article about your own organisation or that of a client is strongly discouraged, as it is difficult to maintain the required neutral point of view. According to our terms of use, paid editors and people editing on behalf of their employer are required to disclose their conflict of interest by posting a notice on their user page or talk page. See WP:DISCLOSE for how to do that. — Diannaa (talk) 11:44, 12 August 2024 (UTC)