User:SOMPeople

To begin, I am not the author of the Wikipedia article regarding superior oblique myokymia. I am merely the hapless SOMer who found this article shortly after it was created. To my amazement, the article used information from my support group site, and offered a link that that support group. However, since our site at MSN Groups is dynamic, and changes and other improvements occur often, that link was broken. It took me until January of 2008 before I realized that I could join here and fix the link. I documented, by comment, who I was and what I had done. Within weeks, I was informed that links to sites such as ours were not condoned.

Our support group has been in existence since late 1999. Two previous sites were lost, and the MSN Groups site was created in March of 2002 after the loss of the first support group. We also have several other online portals for persons who are seeking help with this disorder.

Superior oblique myokymia (SOM) is a rare neuroligical visual disorder. The Centers for Disease Control (CDC) estimate that fewer than 6,000 persons have this disorder, worldwide. Over the past eight years, we have managed to find more than 150 of those people.

Anyone interested in learning more about this disorder will find some of the most relevant research resources linked to our site. It is my greatest desire that support and help be available to all those who need it.

Juds/SOMPeople, Manager of the support group for persons with superior oblique myokymia (SOM)SOMPeople (talk) 01:30, 13 February 2008 (UTC)