User:Dubbin/Huntington external links
Note: please discuss at User_talk:Dubbin/Huntington_external_links or Talk:Huntington's disease.
International and national support organizations
[edit]- International Huntington Association - Umbrella organization for national HD Associations
- Huntington's Disease Society of America
- HD Association England & Wales
- Huntington Society of Canada
- HD Australia
- Scottish Huntington's Association
- HD Association Northern Ireland
Major online 'trans-national' resources for lay readers
[edit]- HOPES project - Stanford University's collaborative and highly respected HOPES project
- HDBuzz - HD research news written by scientists in plain language; funded by the major lay organizations and their main source of research news. 10 languages.
- HD Drug Works - a reliable source of news about current treatments and planned trials
- HD Lighthouse - a popular community-led site offering advice and support. This may be too forum-led to merit inclusion
- Predictive testing for HD - reliable information for people considering a predictive genetic test Too granular?
- Our HD Space - reliable information about HD for young people Too granular?
Major research organizations
[edit]- The Hereditary Disease Foundation - the first major collaborative research and funding endeavor, still highly active in HD research
- Huntington Study Group - a large US consortium of researchers and clinicians with a focus on clinical trials in HD
- European HD Network - a Europe-wide consortium of researchers and clinicians aimed at accelerating research and care for HD
- CHDI Foundation - the CHDI Foundation is the largest funder and driver of HD research globally