Talk:Erythropoietic protoporphyria

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Ideal sources for Wikipedia's health content are defined in the guideline Wikipedia:Identifying reliable sources (medicine) and are typically review articles. Here are links to possibly useful sources of information about Erythropoietic protoporphyria.

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The TRIP database provides clinical publications about evidence-based medicine.
Other potential sources include: Centre for Reviews and Dissemination and CDC

German Wikipedia page

Hello,

If somebody wants to translate the german wiki -articel about EPP, you ´ll find it there:

http://de.wikipedia.org/wiki/Erythropoetische_Protoporphyrie

I am sorry for my english, it´s just not good enough to do the translation by myselfe... Greetings from Germany, Mauersegler77

I think this Google translation would be an excellent starting point. Barring any objections, I'll work on it when I have the time. Argonel42 (talk) 06:33, 27 August 2009 (UTC)[reply]

South African reference

Greetings Editors:

perhaps this website in South Africa can be noted: http://www.porphyria.uct.ac.za/professional/prof-epp.htm

Porphyria South Africa Universities of Cape Town and KwaZulu-Natal

Since EPP is more common in SA (due to the 1688 Dutch immigrant genetic mutation), SA could really offer more up-to-date and complete information.

Non-cutaneous symptoms not part of EPP

Paragraph Four is incorrect. EPP has absolutely no symptoms related to pain of the stomach. some other types of porphyria manifestas pain in the stomach, but not EPP.

^[1] — Preceding unsigned comment added by Wikiusername1234 (talk • contribs) 00:54, 20 August 2011 (UTC)[reply]

I've read a lot of material related to EPP but have never come across anything related to EPP about stomach pains, or porphyrin toxins damaging nerves or "shut[ting] down the nerve trunks one by one". All of this material on the wiki page is unreferenced. kabl00ey (talk) 03:50, 18 December 2012 (UTC)[reply]

References

^ http://www.porphyria.uct.ac.za/professional/prof-epp.htm

?merge

I wonder if this article should be merged with the more general one on 'porphyria'. This would also apply to the article on acute intermittent porphyria.Doctorpete 08:23, 25 May 2007 (UTC)[reply]

I'd recommend not merging. --Arcadian 14:11, 25 May 2007 (UTC)[reply]

Liver disease

doi:10.1136/gut.2006.097576 is specifically about the liver disease in EPP. JFW | T@lk 21:12, 13 June 2007 (UTC)[reply]

New therapeutic drug approval in Italy

It was reported today that the Italian Medicines Agency has authorized the usage of the drug melanotan-1 (generic name "afamelanotide") as photoprotective inducing agent to help EPP sufferers tolerate light better. To my knowledge this is the first therapeutic medicine of this type authorized anywhere in treatment of EPP. I think this bears mentioning in this article but I am wondering what the views of other editors might be?

Thanks, -Scott / Melanotan (talk) 23:31, 17 May 2010 (UTC)[reply]

Seems appropriate to me. kabl00ey (talk) 03:50, 18 December 2012 (UTC)[reply]

[1] ttp://www.porphyria.uct.ac.za/professional/prof-epp.htm

[1]