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Pallium India
Founded2003
FounderDr. M. R. Rajagopal
TypeNon-governmental charitable trust
Location
Area served
India
Websitepalliumindia.org

Pallium India is a national registered charitable trust formed in 2003 aimed at providing quality palliative care and effective pain relief for patients in India. Dr. M. R. Rajagopal[1][2] is the founder and chairman of Pallium India. The organization works with national and international organisations to improve the accessibility and affordability of pain relief drugs (opioids) and other low-cost medicines, to ensure the availability of palliative care services in India and to improve the quality of palliative care services provided by the healthcare and allied health care professionals. In February 2016, Pallium India was accredited by Social Justice Department of Government of Kerala.

Activities

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Pallium India seeks to insure equitable access to effective pain relief and quality palliative care alongside disease–specific treatment through delivery of services, education, building capacities, policy, research, advocacy and information.[3][4]

Pallium India concentrates its activities on areas inadequately addressed by existing organizations. Pallium India works with Central and State Governments of India for integrating palliative care into the healthcare system,[5] facilitating palliative care education and improving access to essential and affordable medicines like morphine and other opioids.

In 2017, Pallium India opened a library dedicated to palliative care. Books were donated by the Elisabeth Kübler-Ross Foundation and Dr. Odette Spruyt of Peter MacCallum Cancer Centre.[6][7]

Pallium India runs home visit programs in and around Trivandrum, as well as inpatient and outpatient clinics in collaboration with different hospitals in Trivandrum.[8] Other services include bereavement support groups, Vocational Rehabilitation Program for patients and families and education of children whose parents are under treatment by Pallium India.[9] Services to poor patients are provided free of cost, expenses met by donations.

The Trivandrum Institute of Palliative Sciences (TIPS) is an organ of Pallium India, established in 2006. In 2012, TIPS was declared a World Health Organization Collaborating Centre (WHOCC) for Training and Policy on Access to Pain Relief.[10][11] Education and research are major activities of TIPS. TIPS provides medical care (inpatient, out-patient and home care services), counselling care, rehabilitation and other supportive services.

The Bruce Davis Training Centre (BDTC), the training division of Pallium India, runs a number of programs and trainings throughout the year with a focus on general awareness among the public and the expertise and competency of healthcare and allied healthcare professionals. These include Certificate Course in Pain and Palliative Medicine (CCPPM) for doctors, in Palliative Nursing (CCPN) for nurses and in Palliative Care (CCPC) for allied healthcare professionals. There are also volunteer training programs conducted frequently.

Pallium India works with several hospitals and organizations to catalyse the development of palliative care centres across India and for introducing palliative care education to professionals.[12][13][14][15]

Pallium India collaborates with the Department of Social Justice of Government of Kerala to improve the facilities for wheelchair-bound people in the state. This includes providing rehabilitation services and advocacy for their improved mobility, including creating pavements and buildings that are wheelchair-friendly.[16] Pallium India regularly organizes awareness programs for the public, get-together for patients, art and craft exhibition, food festival and cultural events to spread the message of palliative care.[17][18][19]

Pallium India works with Paediatric and Paediatric Neurology departments of S.A.T Hospital, Thiruvananthapuram to provide palliative care for children suffering from various illnesses.[20] Pallium India works out of its office at Thiruvananthapuram, Kerala, India.

Currently, Pallium India is advocating for a rational national legislation for end of life care, which allows natural death with dignity and in incurable diseases with access to palliative care, rather than intensive care.[21][22]

Achievements

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Pallium India played a major role in the steps leading to the declaration of a National Program on Palliative care by the Government of India in 2012 November[23] and the Amendment of Narcotic Drugs and Psychotropic Substances(NDPS) Act of India in 2014.[24][25][26] In 2008, Pallium India initiated and followed up a proposal that resulted in the declaration of a "Palliative Care Policy" by the Government of Kerala, making it the first Government in a developing country to have such a policy.[27]

In 2016, Pallium India was awarded the Cancer Aid Society Annual Award for Excellence and Leadership in Palliative Care for the South Asian Association for Regional Cooperation (SAARC) Countries.[28] In November 2017, Pallium India was awarded Sat Paul Mittal Award of appreciation, in Ludhiana.[29]

A group of palliative care experts under the leadership of Dr M R Rajagopal, collaborated to prepare the draft curriculum for M.D. Palliative Medicine, on behalf of Medical Council of India.[30] A curriculum that introduces palliative care to undergraduate medical and nursing education has been submitted to the Medical Council of India.

Pallium India has catalyzed the development of training centres offering quality education in palliative care in Trivandrum (TIPS), Hyderabad (MNJIO RCC), Jaipur (Bhagwan Mahaveer Cancer Hospital and Research Centre) and Ahmedabad (GCRI).

With financial support from international agencies, ten palliative care service centres were established in different states of India - Jharkhand, Tripura, Uttar Pradesh, Manipur, Mizoram, Bihar, Orissa, Gujarat, Meghalaya, Tamil Nadu and Lakshadweep. In collaboration with Australasian Palliative Link International (APLI), Pallium India developed a mentoring program called Project Hamrahi for budding palliative care organizations in India[31][32][33]

Working with national and international experts, Pallium India created the National Standards tool (Minimum Standards for Palliative Care Programs) to ensure quality palliative care.[34]

An advocacy tool initiated by Pallium India with two international partners, called 'the Morphine Manifesto', caught the attention of the international palliative care community so much that 63 international organizations signed up to be launch partners.[35][36][37][38]

References

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  1. ^ "M.R.Rajagopal Bio". International Palliative Care Resource Center. 18 February 2012. Retrieved 14 June 2014.
  2. ^ "M. R. Rajagopal". International Association for Hospice and Palliative Care. Retrieved 14 June 2014.
  3. ^ "India: Provide Access to Pain Treatment". Human Rights Watch. 28 October 2009. Retrieved 14 June 2014.
  4. ^ "Of pain and palliative care". The Hindu. 6 October 2005. Archived from the original on 8 June 2014. Retrieved 14 June 2014.
  5. ^ "India: Improve Access to Strong Pain Medicines". Human Rights Watch. Retrieved 14 June 2014.
  6. ^ "Library dedicated to books on palliative care opened". Times of India. 11 April 2017. Retrieved 13 April 2017.
  7. ^ "Library dedicated to palliative care". The Hindu. 8 April 2017. Retrieved 13 April 2017.
  8. ^ "In India, Dispensers of Balm Travel to Death's Door". The New York Times. 12 January 2016. Retrieved 19 March 2016.
  9. ^ "State government promises land to Pallium India". The New Indian Express. Archived from the original on 6 July 2012. Retrieved 14 June 2014.
  10. ^ "Pallium India alleviating pain with TIPS". The Hindu. 4 July 2012. Retrieved 14 June 2014.
  11. ^ "WHO recognition for Pallium India". The Times of India. 3 July 2012. Retrieved 14 June 2014.
  12. ^ "Morphine Manifesto". International Association for the Study of Pain. Retrieved 14 June 2014.
  13. ^ "Palliative care- the missing chapter in Internal Medicine". The Shillong Times. Retrieved 14 June 2014.
  14. ^ "Big Strides in Palliative Care". Deccan Chronicle. Archived from the original on 7 June 2014. Retrieved 14 June 2014.
  15. ^ "Launch of the Pain-Free Hospital Initiative in three cancer centers in India with Pallium India". Treat the Pain. Retrieved 14 June 2014.
  16. ^ "Big Strides Needed for Safer Steps". The New Indian Express. Archived from the original on 30 July 2015. Retrieved 23 September 2015.
  17. ^ "Food fest for a noble cause evokes warm response". The Times of India. 19 March 2016. Retrieved 19 March 2016.
  18. ^ "Standing up, being counted". The Hindu. 6 December 2015. Retrieved 19 March 2016.
  19. ^ "Art exhibition for a cause". The Hindu. 4 February 2016. Retrieved 19 March 2016.
  20. ^ "With Puppets & Bubble Guns – That's How One Organization Treats Children in Need of Palliative Care". The Better India. 27 August 2015. Retrieved 19 March 2016.
  21. ^ "Why wouldn't the government let me die in peace". Manorama Online. Retrieved 25 August 2016.
  22. ^ Rajagopal, M. R. "Don't Torture The Dying: Health ministry's draft law confuses between euthanasia and withdrawal of life support". Times of India. Retrieved 25 August 2016.
  23. ^ "Pallium India hosted a two day national workshop in Trivandrum". eHospice. Retrieved 14 June 2014.
  24. ^ "In India, a Quest to Ease the Pain of the Dying". The New York Times. 11 September 2007. Retrieved 14 June 2014.
  25. ^ "MR Rajagopal: The man who spearheaded efforts to improve access to morphine". The Economic Times. Archived from the original on 8 March 2014. Retrieved 14 June 2014.
  26. ^ "Passing of NDPS Act Amendment Bill will make morphine more accessible". The Hindu. 22 February 2014. Retrieved 14 June 2014.
  27. ^ "Arogyakeralam Palliative Care Project Ensuring care and support" (PDF).
  28. ^ "Pallium India receives award for excellence and leadership in palliative care". eHospice. Retrieved 25 August 2016.
  29. ^ "Sat Paul Mittal National Award for the year 2017". City Air News. 14 November 2017. Retrieved 6 December 2017.
  30. ^ "Palliative care education in India". eHospice. Retrieved 14 June 2014.
  31. ^ "Project Hamrahi "Fellow Travellers"". Australasian Palliative Link International. Retrieved 14 June 2014.
  32. ^ "A meeting of mind and hearts: Lakshadweep Hamrahi 2013". eHospice. Retrieved 14 June 2014.
  33. ^ Spruyt, O (2011). "Team Networking in Palliative Care". Indian Journal of Palliative Care. 17 (4): S17-9. doi:10.4103/0973-1075.76234. PMC 3140085. PMID 21811361.
  34. ^ Rajagopal, MR; Muckaden, Maryann; Palat, Gayatri; Patel, Firuza; Raghavan, Biju; Reddy, Sureshk; Sunilkumar, MM; Tiruvadanan, Mallika; Joad, Anjumkhan; George, Reena; Gupta, Harmala; Leng, Mhoiraef; Connor, Stephenr (2014). "Creation of minimum standard tool for palliative care in India and self-evaluation of palliative care programs using it". Indian Journal of Palliative Care. 20 (3): 201–207. doi:10.4103/0973-1075.138395. PMC 4154167. PMID 25191007.
  35. ^ "Morphine Manifesto Released". IBNLive. Archived from the original on 15 June 2014. Retrieved 14 June 2014.
  36. ^ Pallium India, International Associ; Pain Policy Studies Group (2012). "A morphine manifesto". J Pain Palliat Care Pharmacother. 26 (2): 144–5. doi:10.3109/15360288.2012.678475. PMID 22764853. S2CID 218867817. {{cite journal}}: |author2= has generic name (help)
  37. ^ "The Morphine Manifesto". PainPolicy. 4 February 2012. Retrieved 14 June 2014.
  38. ^ "Morphine Manifesto". Worldwide Palliative Care Alliance. Archived from the original on 15 June 2014. Retrieved 14 June 2014.
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