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International Bureau for Epilepsy

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International Bureau for Epilepsy
AbbreviationIBE
Formation1961
Founded atWashington DC, USA
TypeNonprofit organisation
Websitehttps://www.ibe-epilepsy.org/

The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961[1] which aims to improve the social condition and quality of life of people with epilepsy.[2] The organization addresses social problems such as employment, education, driving license restrictions and public awareness.[3] Its members are from both the lay public and a professional background.[4] IBE has a network of 140 chapters in 100 countries[5] and often collaborates with the International League Against Epilepsy (ILAE) to increase understanding about epilepsy.[6]

History

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The IBE was formed in 1961, after it was recognised at the ILAE congress the need to establish an organisation that specifically addressed the psycho-social aspects of epilepsy. In 1997, the IBE, the World Health Organization and the ILAE launched the 'Out of the Shadows' Global Campaign against epilepsy,[7] with the aim of improving acceptability, treatment, services and epilepsy preventions globally, as well as working towards closing the treatment gap.[8]

Global Chapters

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The International Bureau for Epilepsy consists of chapters representing national epilepsy associations globally, organized into seven regional structures.[9]

International Epilepsy Day

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International Epilepsy Day began in 2015 and is organised each year on the second Monday of February by the IBE and the ILAE aimed at raising awareness of epilepsy.[10] In recent years, International Epilepsy Day drives the implementation of the World Health Organization's (WHO) 10-year Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP).[11]

References

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  1. ^ "Mission, Objectives and Strategy for Epilepsy". International Bureau for Epilepsy. Archived from the original on 8 January 2014. Retrieved 10 January 2014.
  2. ^ "'About Us'". International Bureau for Epilepsy. 11 April 2024.
  3. ^ "IBE - International Bureau for Epilepsy". European Patients Forum. 17 April 2024.
  4. ^ "International epilepsy organisations". Retrieved 10 January 2014.
  5. ^ Trinka, Eugen (7 September 2020). "Joint Statement for the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE)" (PDF). World Health Organization. Retrieved 11 April 2024.
  6. ^ "Epilepsy.org". Retrieved 14 May 2014.
  7. ^ Prasher, Vee P.; Kerr, Mike P. (2008). Epilepsy and intellectual disabilities. New York: Springer. p. 212. ISBN 9781848002593.
  8. ^ "Global Campaign Against Epilepsy". International League Against Epilepsy. 26 April 2024.
  9. ^ "IBE Chapters". International Bureau for Epilepsy. 11 April 2024.
  10. ^ "IBE Strategic Plan" (PDF). International Bureau for Epilepsy. 26 April 2024.
  11. ^ "International Epilepsy Day". International Epilepsy Day. 17 April 2024.
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