European Platform for Patients' Organisations, Science and Industry
The European Platform for Patients’ Organisations, Science & Industry, based in Brussels was established in 1994 as part of the initiative to promote patients' rights.[1] It is an independent, not-for-profit, partnership-based and multi-stakeholder think tank.[2] It is now also known as Digital Health Europe and is part of the European Patients Forum. [3]
It is particularly concerned with Biobanking, geno-type research. It involves a number of European-facing umbrella patients’ organisations including patients' organisations, commercial enterprises and their related trade bodies, research institutes, professional and business federations.[4]
John Peter Mary Wubbe, a Swiss transplant patient, is the Secretary General. [5]
References
[edit]- ^ Fallberg, L. H. (2000). "Patients Rights in Europe". European Journal of Health Law. 7 (1): 1–3. doi:10.1163/15718090020523007. PMID 12542023. Retrieved 28 June 2020.
- ^ "European Platform for Patients' Organisations, Science and Industry". World Federation of Incontinence Patients. Retrieved 28 June 2020.
- ^ "Digital Health Europe". EU Patient. 2020. Retrieved 28 June 2020.
- ^ "European Platform for Patients' Organisations, Science and Industry". Lobby Facts. 2016. Retrieved 28 June 2020.
- ^ "John Peter Mary Wubbe". Better Science, Better Health. 2018. Retrieved 28 June 2020.