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Other disorders

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--68.195.100.119 (talk) 19:12, 18 February 2012 (UTC) Is it OK if I attempt to expand this page by talking about other disorders that cause it?[reply]

That would be appreciated, and please include references when possible. There's a tutorial to learn how, or just copy the style that's already in the article. Jump right in! Dawnseeker2000 19:28, 18 February 2012 (UTC)[reply]

LDS - Loeys-Dietz

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LDS - Loeys-Dietz needs to be added to the list as people with LDS all often have DE. — Preceding unsigned comment added by Marfanuk (talkcontribs) 16:46, 1 April 2013 (UTC)[reply]

Dural ectasia

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There is a book, a journal, about Karen Shettler Paddock. Dural ectasia was found upon autopsy. She had such severe cerebrospinal fluid leaks with frequent intractable head pain that she took her life; she hung herself with her dog's leash. Her journal is now required reading at Duke!

Current and former research should also be included:


COPD/Chronic Bronchitis/Emphysemaclinstud1.jpg Idiopathic Bronchiectasis and Dural Ectasia: Is there a correlation? IRB Study #11-1997

Sponsor: UNC NCTRACS

PI: Katherine R. Birchard, M.D. Co-Investigators: Mike Knowles, M.D., Leigh Anne Daniels, M.D

To determine if there is a connection between idiopathic bronchiectasis and connective tissue disorders, this study will look to see if dural ectasia is more common in patients with idiopathic bronchiectasis, as compared to patients of bronchiectasis of known causes and patients without bronchiectasis.

Contact: Katherine R. Birchard, MD


I am a patient NOT diagnosed (yet) with any connective tissue disorder. However, I have frequent bronchitis. I have Dural ectasia and Tarlov cyst in the sacrum. I have a Hiatal hernia, osteoarthritis, cervical spondylosis, cord impingement at C5-6 and T6-7 along with herniated discs at those levels, occipital neuralgia, left shoulder adhesive capsulitis, lumbar spondylosis, herniated lumbar disc and L3 nerve root impingement.

I am short; 5'1" so I don't "fit" the criteria for Marfan, and unfortunately internet searches seem to all associate dural ectasia with Marfans. — Preceding unsigned comment added by 77.234.41.175 (talk) 16:59, 12 February 2016 (UTC)[reply]